My song today is….. “Walking In Rythm” by The Blackbyrds. I haven’t shared much however, a month ago I began experiencing problems with my eye. I saw an optometrist and he found a mass behind my eye. I have been referred to a specialist. Not sure what it is but my vision has been impacted by this. The good news is it’s not a blood clot. Whew! Keep me in prayer. Upon some research and consultation with physicians I became aware that a side effect from the cancer drug I’ve been taking is eye damage among other things. Despite the recommendations from my oncologist I made the decision to stop all cancer meds a month ago.
Yesterday I met with doctors at the Bastyr Institute to discuss holistic naturopathic treatment. I began taking some meds yesterday. This morning I woke up not only feeling rested but for the first time in three years the pain in my hands, feet and even Breast (I have severe radiation damage) is nearly gone. This miracle in 24 hours of taking these drugs which by the way are all natural. In truth, I feel really good! I’m not sure what the outcome will be with regards to this new treatment and I’m not sure what the outcome will be with regards to my eye but just for today “I’m walking in rythym, moving with sound. Thinking ’bout my babies (Oliver and Audrey my beautiful grandchildren) trying to get home”. Home meaning….feeling good again. Feeling like my old self again. Just livin’ life again. Hence, I’m Walking In Rythym
It’s been three years since being diagnosed with cancer. What a journey it’s been!! Sometimes I still have to wonder how I’m still standing however, clearly it’s been through the grace of god. Between cancer and all the side effects that came from the treatment to fight this crazy disease, add Cowden Syndrome, Hashimotis, Thyroiditis, lymphodema, neuropathy, a drug induced lupus, fibromyalgia and rheumatoid arthritis, not to mention a crazy ex boyfriend and you’ve got yourself a recipe for disaster.
My last treatment was May 7, 2015. After my treatment my doctors prescribed a hormone blocker to keep the cancer at bay. Since then, I have gone through three different meds. All have caused debilitating side effects.
Recently I began to experience blurry vision. I thought I might have something in my eye so I went to see an optometrist. I was told I had a thick lining behind my cornea as well as many deposits. The doctor suspected Fuchs Dystrophy however Fuchs usually attacks both eyes. I only have one eye that’s being affected. He referred me to a specialist in Seattle. Imagine my dismay after he told me it was possible I would need a cornea transplant. I’ll admit I was overtaken by fear as well as tears that began to roll down my face. I asked “is it cancer?” The doctor replied “I don’t know”
After my appointment I spoke to a friend on the phone. He said his friend was an optometrist in the Bay Area and would reach out and ask the doctor to call me. I spoke to the doctor that night. I told him all the meds I was on. One of them is tamoxifen. Tamoxifen is a hormone blocker to prevent my type of cancer. My cancer is HER2 positive/ Estrogen positive. Lucky me. The doctor shared one of the side effects from the drug is eye damage. I contacted my oncologist the following day and sure enough. That is one of the side effects. I told the nurse I was going to stop the meds immidiately. This is my third reaction to the wonder drugs I’ve been forced to take to fight this crappy disease. I’ve been on Anastrozole, Letrizole and now Tamoxifen. All have had such negative effects on my body, mind and spirit. I couldn’t believe it when the nurse said “there’s one more drug you can try”. I thought “Are you kidding me?!” I couldn’t believe she would suggest such a thing. I wanted to jump through the phone and slap her!!
Six months ago I couldn’t walk. I couldn’t open my hands. I was in excruciating pain. I was diagnosed with a drug induced lupus, fibromyalgia and rheumatoid arthritis. I was told that the Letrizole I was on was not only attacking cancer, it was attacking my immune system and body. At that time I wanted to stop all meds but was told doing so could be fatal. It’s my understanding I have an incurable cancer however it’s treatable which is why I’ve endured such an aggressive and continued treatment. I agreed to try tamoxifen. The result, the pain got better but now my vision is impaired. Omg! This isn’t worth it!
A year ago I joined the John Maxwell Team. I joined because after all the challenges I’ve faced I really wanted to make a difference in the lives of others. I don’t wish what I’ve endured on anyone. The John Maxwell Teams mission is to add value to the lives of others. I knew in my heart that it was a perfect fit for me. My goal in life has always been to be a voice of hope and inspiration for others. I’ve been so sick that other than my blog and Facebook posts, I haven’t been able to accomplish my mission. As I pondered the thought of trying another drug to defeat cancer I had to ask myself “is this worth it?” My answer “No!!”
I have decided to pursue holistic treatment. I have an appointment on August 9th at the Bastyr Institute in Seattle. One of the best in the nation. I have stopped my meds. The truth is, how can I or anyone accomplish any mission if we’re sick. I want to do great things. I want to live life to the fullest. I want to travel, I want to spend time on the beach but most of all I want to add value to the lives of others. I want to make a difference in this crazy world!
Our current White House has turned into a Cracker Jack Palace inhibited by enough peanuts for a baseball game. There’s a battle about health care. There are people in America fighting cancer and other diseases. There are women being abused, people trying to overcome addictions, depression, anxiety and even PTSD. I am no stranger to all of the above and then some. I want my story to be someone’s hope. I want my story to help bring change!! After all, I’m still standing. What good is keeping cancer at bay when doing so has caused physical damage and now eye damage. I can’t make a difference.
I’ve been a warrior all my life. I believe we all have a warrior spirit that lives inside of us. I also believe it’s important for all of us to do our best to do great things, help others and strive to make positive changes in this crazy world. That’s really what life is all about. It’s not about how much money we have, the car we drive or even the home we live in or the clothes we wear. It’s all about making a difference. You’ve heard the question “What would Jesus do?” I can tell you Jesus wouldn’t sit back and not lend a helping hand to those in need or to those who are suffering. He wouldn’t sit back and do nothing.
I’m on my last leg. I know this. I have no idea if holistic treatment will work. I have no idea if my cancer will return but what I do know is I’m not going to just roll over and do nothing. I’m going to do my best to make a difference. I didn’t become a certified member of the John Maxwell Team so I could lay in bed and do nothing because I’m sick!! If I have one year, five years or even ten years left I want to live each and every day feeling strong enough to inspire others to do the same. Maybe if I don’t give up, they won’t either. Will I succeed? I have no idea but in the words of Michael McDonald…..I’ve Gotta Try!